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Please use this identifier to cite or link to this item: http://hdl.handle.net/10564/3754

Title: Assessment of self-/parent-reported quality of life in Japanese children with haemophilia using the Japanese version of KIDSCREEN-52.
Other Titles: 日本における小児血友病患者の日本語版KIDSCREEN-52を用いたQOLの自己評価および保護者による評価
Authors: Furuichi, Yasuko
Nogami, Keiji
Yada, Koji
Nezu, Satoko
Obayashi, Kenji
Saeki, Keigo
Kurumatani, Norio
Nakajima, Mitsuru
Kinoshita, Seiji
Shima, Midori
Keywords: children
haemophilia
health-related quality of life
self-assessment
survey
Issue Date: Mar-2020
Publisher: John Wiley & Sons Ltd.
Citation: Haemophilia Vol.26 No.2 p.243-250 (2020 Mar)
Abstract: Introduction: Assessing health-related quality of life (HRQOL) is critical for providing comprehensive clinical care to patients with haemophilia. HRQOL in individuals with similar cultural backgrounds should be compared using internationally standardized, generic questionnaires. Aim: To evaluate self-/parent-assessed HRQOL in Japanese children and adolescents with haemophilia A or B. Methods: Children and adolescents aged 8-18 years were enrolled. The haemophilia group comprised families with haemophilia, and the control group comprised those without chronic illness. HRQOL was assessed using the self-/parent-reported questionnaire KIDSCREEN-52, the Japanese version. The Oslo 3-Item Social Support Scale was investigated. Results: The questionnaire was completed by 36 families in the haemophilia group and 160 parents and children in the control group. Haemophilia children aged 8-12 years had lower scores for 'moods and emotions' than control children; the parents had lower scores in the haemophilia group than in the control group for 'moods and emotions', 'social support and peers', and 'school environment'. No significant differences in HRQOL were observed between both groups of adolescents aged 13-18 years or their parents. Neck-shoulder pain was associated with a low psychological state, including 'self-perception', but other joint pains did not affect the outcomes of the HRQOL indices. Social support weaknesses were associated with low physical and psychological states, whereas unexpected hospital visits identified low values for 'self-perception', 'autonomy', and 'school environment'. Conclusion: Proactive mental and clinical care in haemophilia families, especially with young children, will foster a better environment for patients and their parents and ease concerns about progress in haemophilia.
Description: 博士(医学)・甲第747号・令和2年6月30日
© 2020 John Wiley & Sons Ltd.
This is the peer reviewed version of the following article: [https://onlinelibrary.wiley.com/doi/full/10.1111/hae.13945], which has been published in final form at [https://doi.org/10.1111/hae.13945]. This article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Use of Self-Archived Versions.
発行元が定める登録猶予期間終了の後、本文を登録予定(2021.03)
URI: http://hdl.handle.net/10564/3754
ISSN: 13518216
Academic Degrees and number: 24601A747
Degree-granting date: 2020-06-30
Degree name: 博士(医学)
Degree-granting institutions: 奈良県立医科大学
Appears in Collections:2020年度

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