喉頭全摘出者が患者会に参加していない理由

Abstract

目的: 喉頭摘出者（以下、喉摘者）が退院後に患者会に参加していない理由を明らかにする。方法: 関東甲信越地方と九州地方で活動する患者会に会員登録をしているが、調査時点において患者会に参加していない喉摘者522名を対象に、患者会活動に参加していない理由を質問紙郵送法で調査し、質的帰納的に分析した。結果: 喉摘者が患者会に参加していない理由は、【身体的状態が整わない】、【社会役割遂行との折り合いがつかない】、【患者会参加が億劫】、【経済的に余裕がない】、【患者会の活動が自分のニーズに合わない】、【患者会に通わなくても大丈夫】の6テーマに集約された。考察: 喉摘者個々に合わせた退院前からの継続的なセルフケア獲得への支援や患者会や社会資源の活用に関する情報的サポートが重要である。更に、現行の患者会活動と連携を図りながら、退院後の喉摘者が活用可能なサポート体制を構築する必要性が示唆された。

PURPOSE: The purpose of this study was to clarify why laryngectomized patients have not participated in a Self-Help-Group(SHG) after discharge. It is not clarified what kind of support they need after discharge. METHODS: Among SHG members in prefectures in the Kanto and Kyushu regions of Japan questionnaires were mailed to 522 SHG members who had not participated in SHG at the start of this study and agreed to participate in this research for analyzing the reasons why they have not participated in SHG qualitatively and inductively. RESULTS: The reasons for non-participation were classified into six items: "insufficient physical fitness" ; "unable to come to terms with social roles" ; "psychological barriers to participation" ; "unableto attend for financial reasons" ; "SHG activities not satisfying their own needs" ; and "no perceived need to participate". DISCUSSION: It is important to provide laryngectomized patients with social resources and continuous personalized support, starting before hospital discharge, to help them acquire self-care ability. Further, it is necessary to establish a system in which discharged laryngectomized patients can utilize support provided by medical welfare specialists, in collaboration with current SHG activities.